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Washington D.C., Sep 21, 2019 / 08:00 am (CNA).- An immigrant who has lived in the U.S. for more than 16 years while receiving life-saving medical treatments is hoping for a reprieve after being given weeks to leave the country.
Maria Isabel Bueso, a 24 year-old immigrant from Guatemala, has lived in the U.S. without citizenship since 2003 through temporary extensions of “deferred action,” or delays of deportation, so that she can stay and receive treatment for her rare medical condition.
Bueso - Guatemala - US - Family - Trials
Bueso traveled from Guatemala to the U.S. with her family in 2003 to participate in clinical trials for her rare genetic disorder. After more than 16 years, she was notified in August that she would not be able to renew her status in the U.S. because the administration would stop considering non-military requests for deferred action. She was given 33 days to leave the country.
On Sept. 19, the U.S. Department of Homeland Security (DHS) announced that it would resume granting non-military deferred action on a case-by-case basis,
Bueso - News - Wendy - Bloom - CNA
Bueso was “thrilled” by the news, her nurse, Wendy Bloom, told CNA, but remained only “cautiously optimistic” until she has full certainty of her status and hopes her case will draw attention to the plight of others like her.
“She’s really nervous until she actually gets an official letter that says ‘you are allowed to stay here,’ then she’ll be ready to have a party,” Bloom, a member of the California Nurses Association, told CNA.
Bueso - Advocate - Patients - Diseases—some - US
Bueso has become an advocate for other patients with rare diseases—some of who needed to travel from outside the U.S. for treatment.
She has Maroteaux-Lamy Syndrome (MPS-VI) which is a rare genetic disorder, and was invited to the U.S. at age seven to participate in clinical trials conducted by Dr. Paul Harmatz at Children's Hospital and Research Center in Oakland, California.
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